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Association Between Lung Function and Quality of Life in Cystic Fibrosis

Dear WikiCF members:

 The degree to which your lungs are able to function is an important factor in determining the status of cystic fibrosis and health-related quality of life.

Studies have shown that patients with better forced expiratory volume (in other words, the ability to force volumes of air out of your lungs) tend to have a better health-related quality of life. 

Health-related quality of life measures are increasingly being used to measure things like quality of life, and to measure the effectiveness of medical interventions and treatments in an effort to improve a patient’s condition.

A Cystic Fibrosisi Quality of Life Questionnaire was given to cystic fibrosis patients every 2 years over a 12 year period in an effort to measure the relationship between lung function and health-related quality of life.

The results of the study showed that over time, there was a gradual decline in lung function, which was associated with a gradual decline in health-related quality of life. Perhaps what is interesting to the patient and their care team is how this measure can be used to monitor the efficacy of medical interventions and treatments.

If you are interested in learning more you’re welcome to consult the full study method and results as well, (abstract and introduction are easily understandable).

We hope this information and study are useful to you.

Professor Tacjana  Pressler

Department of Pediatrics, Rigshospitalet

Copenhagen, Denmark

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Cystic Fibrosis Medicine. Free access to clinical information
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