Research

Irish-led project has potential to revolutionise cystic fibrosis treatment

An Irish-led international consortium of experts has started a major project to develop personalised antibiotic treatment for cystic fibrosis patients during respiratory infections.   The CF Matters (Cystic Fibrosis Microbiome-determined Antibiotic Therapy Trial in Exacerbations: Results Stratified) project will receive €6 million…

Cystic Fibrosis Data

This website consolidates published statistics from cystic fibrosis (CF) patient registries and aims to encourage development of international CF data. Patient registries, often called data registries, are the most reliable source of statistical information about a low-prevalence disease. Because of…

I am 29, I thought I just had bronchitis

My name is Vladimir, I'm from Ukraine. I grew up as a very active child, not a day without football in the summer or ice hockey in the winter; I was always the first to be ready to do some sports...…

Treatment of lung infection in patients with cystic fibrosis: Current and future strategies

In patients with cystic fibrosis (CF) lung damage secondary to chronic infection is the main cause of death. Treatment of lung disease to reduce the impact of infection, inflammation and subsequent lung injury is therefore of major importance. This research discusses…

European CF Society Patient Registry: What is it and why do we need it?

Many centers and countries collect data on the CF patients in their care in order to keep track of lung function, mortality, treatments etc. Sometimes these registries are also used by the local authorities for certification of specialist CF centers…

Research for a better and longer life with CF: what, how and who?

Cystic Fibrosis is still an incurable disease, but a whole array of treatments can help to prevent, delay and treat symptoms and complications.  However, these treatments are often complex, time consuming (an average patient spends 3 to 4 hours on his/her…

European Cystic Fibrosis Clinical Trial Network

"The European Cystic Fibrosis Clinical Trial Network is a network of CF centers, aiming at intensifying clinical research in the area of cystic fibrosis and to bring new medicines to the patients as quickly as possible."   Source:  http://www.ecfs.eu/ctn

IMPACTT.eu

The IMPACTT project will complete a clinical phase III trial, to demonstrate the critical preventive and therapeutic effects of a pioneering intervention therapy (based on the avian polyclonal Anti-Pseudomonas IgY formulation) for chronic infection of Pseudomonas aeruginosa in CF patients.…

The European Cystic Fibrosis Society (ECFS)

The ECFS is a Society of European and international experts in all fields of CF research.

European CF Patient Registry

People with CF may be listed in a disease registry that allows researchers and health care professionals to know more about the disease and the effect of treatments, track health results and identify candidates for clinical trials. The European CF Patient…

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