Life with CF & finding support

Living with cystic fibrosis

The red tulips in my small patio garden have finally shown their petals. A cabbage white butterfly flutters briefly before my nose, the first this year. The sun radiates down on me and my dog Rosie, who is lying carefully…

Organ donation breathes new life into cystic fibrosis patient

Darvy Culleton was 30 years old when he received the best Christmas gift ever in his life at the Vancouver General Hospital. “It was a double lung transplant,” Darvy says. “I was in pretty rough shape before that – my life…

My daily life with CF

I do not lead a “normal” life like someone who is totally healthy but I am trying to do it as far as possible within my limitations. Mornings start with physiotherapy, inhalers, nebulizer, medication for transplant and all other drugs for…

My childhood and youth with CF

Hi, my name is Lucas and I was born in Spain, 1983, during the time when cystic fibrosis (CF) was barely known in this country. One year before I was born my parents had just lost a son who had…

Polish CF Patient - Iga Hedwig Diary - published in 2011

The Diary of Iga Hedwig is an authentic story of a teenage girl Iga, who faces a genetic disease – Cystic Fibrosis. She was born in Poland where reality was very difficult. Iga, fully aware of the fragileness of her life…

Online CF communities

Sharing your thoughts and concerns with other people helps in dealing with a disease.  Wikicf is an open, free website for and by people living with CF, their families and friends. It is created and managed by CF Europe, so all…

Cystic Fibrosis and Passive Smoking

The dangers of smoking and second-hand smoke have been known for many years. But when you or your child suffers from CF, protecting your lungs from the harmful effects of cigarette smoke is critical – any smoke can make the…

How to Support Someone with Cystic Fibrosis

When someone you love suffers from cystic fibrosis, you want to do anything and everything you can to help and support them. Listening and "being there" when needed is an important first step.  Besides, there are some very practical ways…

How to Cope with Cystic Fibrosis

Living a normal daily life can be one of the frustrating challenges of CF, but there are ways that you can make your day-to-day life a little bit easier. We invite you to add your experiences about living with and…

How to Choose the Best CF Center?

Finding the best treatment center is a critical step towards better management of CF. Regular follow-up in a specialised CF clinic by a multidiciplinary team is the best way to ensure optimal care and health outcomes. “Standards of care for patients with…

Is your child newly diagnosed with Cystic Fibrosis?

This is a test When a child is initially diagnosed with cystic fibrosis, it can be an very emotional and difficult time for the entire family. Thanks to advancements made in treatment and care, people with Cystic Fibrosisi are living longer and better…

Where to Find the Best Support when you Have Cystic Fibrosis?

When you have cystic fibrosis, it is important to remember you are not alone in facing the disease. Family, friends and caregivers have a critical role in successfully managing the disease. There are many places a cystic fibrosis patient and his…

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