CF care and management

Health Hack Dublin Winners Announced

Meeting real health needs with novel and innovative solutions was the goal of Health Hack Dublin, which took place at the Irish Computer Society HQ in Ballsbridge and saw over 70 healthcare professionals and technology experts come together this weekend. Healthcare…

Cystic Fibrosis Breakthrough Reveals Why Females Fare Worse Than Males

ScienceDaily (May 24, 2012) Researchers from the Respiratory Research Division of the Department of Medicine, Royal College of Surgeons in Ireland (RCSI) have published a study which represents a major breakthrough in understanding why females with cystic fibrosis do worse than…

CF Conferences in Poland. Organized by PTWM

The situation of Cystic Fibrosis patients in Poland has improved over the last years. There is no doubt however that it still needs improvement in many areas. One of the actions taken by organizations supporting CF people in Poland is the continuous…

Medical examinations

Regular check-ups to monitor the disease and adapt the treatment where and when needed, in a specialised CF center by a mutidisplinary team, are essential to prevent, delay and effectively treat complications. A multitude of tests are used to identify complications of…

European standards of care

“Standards of care for patients with CF: a European consensus” is the accepted guideline for CF care in Europe (Journal of Cystic Fibrosis 2005 Mar;4/1/:7-26). Essential elements are regular check-ups by a multidisplinary team (with pulmonology, nutrition, physiotherapy, nursing, psychosocial and other…

Multidisciplinary center care

Regular follow-up in a specialised CF clinic by a multidisciplinary  team is the best way to ensure optimal care and health outcomes for cystic fibrosis. “Standards of care for patients with CF: a European consensus” are the accepted guideline for…

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