What is Cystic Fibrosis Europe?

Cystic Fibrosis Europe (CFE) is the federation of national CF Associations in Europe.

The organisation fights for a better and longer life for all people with CF in Europe. We want to ensure that all CF patients have equal access to the best possible treatment now, to enable them to benefit from disease stopping therapies in the near future.

Cystic Fibrosis (CF) or mucoviscidose is the most common life threatening inherited disease in Europe.

Early diagnosis, regular follow-up by specialists, proper hygiene and correct, timely treatment of symptoms can prolong and save lives and improve the quality of life.

Some children with CF die before their 10th birthday; others live well into their adulthood, depending on where they live in Europe. We can’t accept a gap in healthcare access and outcomes leading to a premature death sentence… depending on where you were born!

Although 1 of 30 Europeans carry the gene that can cause CF, few people know of the disease and patients and families all around Europe have to fight for understanding, support and access to proper care every day.

ENSURING A BETTER AND LONGER LIFE, for all people with CF in Europe, is the mission of CFE.

By building stronger CF associations throughout Europe and collaborating with all groups towards this goal, CFE works for better access to care and a better quality of life for every child and adult living with CF in Europe.

CFE  was founded at the European CF Conference in Belfast in 2003. At this moment 39 national CF Associations are member of CF Europei.
CFE works in close cooperation with other national, European and worldwide organizations, groups and institutions of similar aims and objectives.

The main objectives of CF Europe are:

• to improve the quality of life of Cystic Fibrosis patients and their families in Europe
• to represent and defend the interests of CF patients and their families in all walks of life
• to raise public awareness and understanding of the concerns of the CF patients and their families
• to promote appropriate medical care for Cystic Fibrosis patients everywhere in Europe
• to promote efficient, patient-centered Cystic Fibrosis research

In order to realise its objectives, CF Europe looks for funding via sponsoring, donations and subsidies.

For more information on CF Europe, contact us @ hilde@muco.be or visit our website www.cfeurope.org.

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