Add a video

Multimedia

items found

Or select a keyword below

what is CF?Surfing with kids with CFdaily lifemanaging the diseasetaking medicationtreatmentsweat testsymptompssalt levelclinical trialstaying healthynutritionstarting a familypregnancyresearchlife expectancyCF Foundationexercisefight CFCF awarenesstestimonialorgan donationtestcarrier testinglung transplantliving with CFvideomothers storywhat is cystic fibrosisanimationTV spottrailerchristopherrare disease daysportpatient experiencediscoverycystic fibrosis foundationLithuaniadiseasedefinitionCystic FibrosisproteintreatmentspatienteslifekidschildrentrainingTour De FrancetherapySteven De WilderprogressgoalsgeneticcyclingCol Du GalibierClimbingrespiratory diseaseslungsLindsay WadleighLindsay ShippDr. Fredrick Van GoorcffsportsskatingmucusmovebreatheairBelgium2012CourageTOBIPodhalerNovartismedicationinitiativeCF week 2012Serbiaunicyclesupportridingpatienttribute65 rosesworkswimmingdreamsinequalityawarenessflash mobCFIrelandCoachBasketballpatientsFoundationcaregiversschoolchallengemotivational videohospitalchildhoodfriendFightpromiseNHLice hockeyLiving with cystic fibrosisFamilyDaily therapycystic fibrosis canadadisease awarenessCystic fibrosis awareness monthcéline dionawareness monthTEDxTEDEventClaire WinelandEvery Breath I takeClaire's Place FoundationsuperformulaJWT brazilCancerSimone Cowland TrustSimone CowlandFundraisingmatthew sowemimoemma kingstoncystic fibrosis trustBBCorganmemberKidKadyn CarrollInterviewWW World CF DayWorld Wide CF DayteenagerpassioneffortNACFCCongressCF weekMonkey Trail

Living with CF

A very encouraging message from a CF patient (in French).

Category: Disease management

Comments 0

CF Monkey Trail

Category: Living with CF

Comments 0

North American Cystic Fibrosis Conference 2013

The Cystic Fibrosis Foundation caught up with attendees from around the world at North American Cystic Fibrosis Conference 2013.

Category: What is CF?

Comments 0

The rest is up to me

The Trust has released a new film on YouTube by and for teenagers and young people living with cystic fibrosis. "...the rest is up to me", the six stars, aged 14 to 20, discuss what living with a genetic condition means for young people. As well as offering support for young people with cystic fibrosis, the film is designed to help other teens understand what it me...

Category: Living with CF

Comments 0

World CF Day in Turkey

The Turkish CF association organized an event on the worldwide CF day, September 8, in Istambul.

Category: Living with CF

Comments 0

World CF Day in Japan

This video , made by Anabel & Isabel Stenzel of the USA, half Japanese twin survivors of cystic fibrosis brings awareness to the challenges of CF patients in Japan.

Category: Living with CF

Comments 0

Dia Mundial de La Fibrosis Quistica en Colombia

On September 8, hundreds of CF people and their families gathered in Medellin to raise awareness of this "invisible" disease.

Category: Living with CF

Comments 0

Día Mundial de la Fibrosis Quística en Argentina

Aregntina celebrated the World CF Day by releasing hundreds of balloons in Buenos Aires.

Category: Living with CF

Comments 0

Dia Mundial de La Fibrosis Quistica en El Salvador

Celebration of the World Wide CF Day on September 8 in El Salvador at El Salvador del Mundo Square.

Category: Living with CF

Comments 0

Interview with 3 year-old, Kadyn Carroll

Diagnosed with Cystic Fibrosis shortly after birth, Kadyn has had to battle the debilitating effects of the disease continually. She has endured more in 3 years than most people face in a lifetime. Every day, Kadyn does multiple hours of treatments to maintain just the basic level of health so many of us take for granted. Her days consist of breathing treatments,...

Category: Living with CF

Comments 0

Organ Donation - My personal video

David is married to Lili, who is waiting for a lung transplant since the year 2012. He is raising awareness for Cystic Fibrosis and organ donation through this video, where he explains his major dream: living a long life with her wife

Category: Living with CF

Comments 0

Emma Kingston's story and Matthew Sowemimo advices

BBC East Midlands Today is talking about Emma Kingston who is fighting CF and needs a lung transplant. Matthew Sowemimo from Cystic Fibrosis Trust elaborates on this topic and provides some advices to improve the lung transplant surgery.

Category: What is CF?

Comments 0

Simone Cowland Trust Appeal Film 2012

Simone Cowland Trust was founded in 2006 to raise funds for Cystic Fibrosis sufferers in memory of Simone Cowland, who tragically lost her battle with CF aged 36. To date, the Trust have raised over £600,000 for CF sufferers and their families.

Category: Living with CF

Comments 0

Emily's Story

Learn why Emily Schaller participates in clinical trials to help advance treatments for cystic fibrosis.

Category: Disease management

Comments 0

Transforming Young Cancer Patients into Superheroes

A hospital in Brazil came up with the idea of transforming the drugs and therapies of young cancer patients into something different therefore they would feel like superheroes. They can be motivated during the therapy like that, moreover, compliance is better. Amazing idea!

Category: Disease management

Comments 0

Cystic Fibrosis Isn't Stopping Claire Wineland - Surviving and Thriving

Cystic Fibrosis isn't stopping Claire Wineland, she's surviving and thriving! Kirsty interviews one of the most inspiring teens you'll ever meet. Claire is an inspiration to all people coping with Cystic Fibrosis and everyday challenges. She's the founder of Claire's Place FoundationCategory: Disease management

Comments 0

Life of Impact: Claire Wineland at TEDx Malibu

Claire Wineland was born with cystic fibrosis. This is not, however, what characterizes her. Claire is a fifteen year-old singer, an artist, a composer, and a natural-born comedian and speaker. www.clairesplacefoundation.org

Category: What is CF?

Comments 0

Celine Dion - Message for Cystic Fibrosis Awareness Month

Video of Céline Dion giving a message for the Cystic Fibrosis Awareness Month.

Category: What is CF?

Comments 0

A Day in the Life of a Cystic Fibrosis Patient

One Canadian living with cystic fibrosis and the challenges of her daily therapy.

Category: Disease management

Comments 0

Brodie

A cute video where Brodie presents his life with Cystic Fibrosis.

Category: Living with CF

Comments 0

Somebody That I'll Never Know (Gotye parody)

2013 FilmLife entry - 'Somebody that I'll never know' by Brooke Huuskes. FilmLife brings greater awareness about organ and tissue donation and is a creative way to #havethechat. This video is a short parody that depicts Kimbra consenting for organ donation.

Category: What is CF?

Comments 0

LACE BITE - Official Movie Trailer

"You won't believe what 40 women did for 10 days one summer! To make good on a promise to a dying friend, they played the equivalent of 3 NHL regular seasons in just 10 days. In doing so, they broke the world record for the longest ice hockey game ever played." They pushed through for a noble cause... cystic fibrosis. You'll laugh, you'll cry, you'll be inspired.

Category: Living with CF

Comments 0

Ashleys Cystic Fibrosis Video

"It is important that you know, CF does not affect everyone the same way. We each have a unique battle, but we share a common goal... for CF to stand for cure found!"
Watch Ashleys video were she explains her life with CF and what the disease is.

Category: What is CF?

Comments 0

Cystic Fibrosis is why we are here (CF Trust)

Category: What is CF?

Comments 0

Circle of Friends - My friend has CF

A video made by Niamh Molloy for her friend Triona Priestley from Ireland who has Cystic Fibrosis. The aim of the video is to raise awareness, and to tell Triona how much she means to Niamh and her friends.

Category: Living with CF

Comments 0

Claire explains Cystic Fibrosis

Claire talks about what she's got… OK, it is boring being at the hospital but there are some other good things!

Category: Living with CF

Comments 0

Cystic Fibrosis at school

A brief introduction to some challenges that kids with cystic fibrosis (CF) face at school.
What teachers of kids with CF should know.

Category: Disease management

Comments 0

Cystic Fibrosis Foundation - Greater Illinois – 2013

Watch the 2013 Greater Illinois Chapter Video. Volunteers are the key to the Cystic Fibrosis Association success, and they encourage you to get involved! Whether you join a committee and help get sponsors for an event, recruit companies to put together walk teams or volunteer time in their office, you help them achieve their mission— trying to cure and control cystic fibrosis.

Category: Disease management

Comments 0

Coaches care for CF - Seton Hall Basketball Show

Alex Tarletsky appeared on the Seton Hall Basketball Show with Coach Kevin Willard to talk about Cystic Fibrosis, the Alex Tarletsky Golf Tournament and more.

Category: Living with CF

Comments 0

1 in 1000 for Cystic Fibrosis Flash Mob

On March 10th 2012 Whynot Dance Company under the direction of Lisa Tyrrell took to Grafton Street Dublin to help raise awareness for The Cystic Fibrosis Association of Ireland and to encourage women to hang up their heels and sign up to the 1 in 1000 campaign sponsored by Abbott Ireland to partake in this years Flora Women's Mini Marathon for Cystic Fibrosis.

Category: Disease management

Comments 0

Ali and Christina's Song for the CF Community: "Something About Me"

Watch this video for a sneak peek at the inspirational song co-written and recorded by Ali and Christina Christensen, sisters with cystic fibrosis and 2010 finalists on NBC's America's Got Talent. "Something About Me" shares Ali and Christina's message that challenges, such as living with cystic fibrosis, do not define them or hold...

Category: Living with CF

Comments 3

Cystic Fibrosis Q&A

Whitney has compiled all the questions about CF she has been receiving: school, relationships, hanging out... Here you have her answers!

Category: Living with CF

Comments 0

Presenting the IV European CF Week: News Conference

Within the IV European CF Week framework, patients and profesional healthcare associations have made a call to increase the social awareness about this serious disease and have informed against the inequality situation around the European Territory.

Category: Living with CF

Comments 0

Kate Daly for 65 Roses

Kate is determined that her Cystic Fibrosis will not stop her dreaming big dreams and striving to achieve them. She dreams of being a swimming champion. It’s going to take a lot of hard work. Lucky she’s getting some coaching from one of the Australian Olympic great.

Category: Living with CF

Comments 0

"65 Roses" - A Collaborative Tribute

65 Roses is a collaborative artwork project dedicated to families, friends and loved ones whose lives have been affected by Cystic Fibrosis.

Category: Living with CF

Comments 0

Raising awareness in Serbia

Serbian Association announcement on National TV on relation to the European CF Week 2012 and the awareness about the disease.

Category: Living with CF

Comments 0

Introduction to Using TOBI Podhaler

TOBI Podhaler is indicated for the suppressive therapy of chronic pulmonary infection due to Pseudomas aeruginosa in adults and children aged 6 years and older with cystic fibrosis.

Category: Disease management

Comments 0

Courage in Sports - Official 2012 Trailer

Watch Jerry Cahill, 56 years old with CF and recipient of a double-lung transplant, on CBS's "Courage in Sports," a special episode featuring remarkable and inspiring athletes. Please check local listings for the time in your area.

Category: Living with CF

Comments 0

Move for Air 2012 CF Belgium

This video stars the team of the Belgian CF association ‘moving for air’. You don’t need to be very sportive, or do very special things to participate, even during your daily activities you can ‘move for air’.

Category: Living with CF

Comments 0

Eli Moves For Air

10 years old Cystic Fibrosis patient riding an unicycle for 10km through rough offroad terrain to tackle this terrible disease and collect money for charity. Support this young courage boy and sponsor the action via bergenwiel.blogspot.be

Category: Living with CF

Comments 0

Holly Pereira Organ Donation Awareness!

"Im trying to raise awareness about organ donation. Please take the time to hear my story and spread the word about donation smiley Thank you!".

Category: Living with CF

Comments 0

Muco Move For Air 2012 (#EuropeanCFweek 2012)

The campaign ‘Move For Air’ wants to put a focus on the importance of sport and ‘moving’ in daily life for people with CF. This video wants to show that there is different ways of ‘moving’.

Category: Disease management

Comments 0

"The Power Of Two" Official Trailer

Inspired by their 2007 memoir, “The Power Of Two” offers an intimate portrayal of the bond between half-Japanese twin sisters Anabel Stenzel and Isabel Stenzel Byrnes, their battle with the fatal genetic disease cystic fibrosis (CF) and miraculous survival through double lung transplants.Category: Living with CF

Comments 0

Groundbreaking "Kalydeco" (KGTV News San Diego)

Lindsay Shipp was one of 161 who participated in the Phase 2 clinical trial of Kalydeco™. During high school and college, she sang and danced in musicals and dreamed of being on Broadway. That dream died when her lungs started to fail. Two years later, Shipp can feel the results wit...

Category: Disease management

Comments 0

Climbing For Life - Live your dreams

Do you want to overcome your obstacles? Steven De Wilder, born with cystic fibrosis, a life threatening genetic disease, proves you can achieve your goals no matter what.This video shows his everyday therapy and training progress for Climbing For Life. A cycling event that will take him to the top of the legendary Col Du Galibier.

Category: Living with CF

Comments 0

Getting Nosey about CF with Oli and Nush

A short film made for the Cystic Fibrosis Trust (www.cftrust.org.uk) by Absolutely Cuckoo, to help children with Cystic Fibrosis understand their condition and to explain to other children what Cystic Fibrosis is.

Category: What is CF?

Comments 0

Clinical research

Cystic Fibrosis Research at Texas Children's Hospital:

Families and patients discuss their experiences with clinical research and how it has improved their lives and the lives of others. Positive faces, smiling faces!

Category: Disease management

Comments 0

Pulse to the Cystic Fibrosis (Lithuania)

Documentary shown on Lithuanian National Television (Lithuanian language)

Category: What is CF?

Comments 0

Adding Tomorrows -Cystic Fibrosis Foundation

Adding Tomorrows: Young patients describe what it feels like to have CF and how they cope with the disease.

Category: About WikiCF

Comments 0

Rare Disease Day, 29 Feb 2012

This video clip has been produced by Animo Productions with pro bono support from Bursons Martseller.  The patients featured are members of the Irish Rare Disease Patient National Alliance (Genetic and Rare Disorders Organisation). We thank them and GRDO for their invaluable contribution.
 

Category: What is CF?

Comments 0

Becoming Christopher

A fictional video trailer about living with Cystic Fibrosis

Category: Living with CF

Comments 0

CF week - Belgium

Belgian CF commercial for the European Cystic Fibrosis Week of 2011 to ask support for a systematic newborn screening in Belgium.

Category: Living with CF

Comments 0

A Kiss - not every kiss is sweet

A kiss may be more important than you think. Not every kiss is sweet. Patients with cystic fibrosi...

Category: What is CF?

Comments 1

CF Awareness week video

Take a break!

Category: Living with CF

Comments 0

Cystic Fibrosis - Newborn Screening Test

Information about new born screening test in New York. The procedure is similar everywhere, but not all countries and not all regions or clinics in a specific country screen for Cystic Fibrosis in newborn babies (yet)...

Category: What is CF?

Comments 0

Cystic Fibrosis and Starting a Family drimington

Jenny Davison, CF patiente, happily married and proud mother of Dara. A little over a decade ago marriage and starting a family seemed to be an unthinkable dream for adults with CF. This "LIVING. BREATHING. SUCCEEDING." Podcast/Vodcast series is the 3rd of 12.

Category: Living with CF

Comments 0

Cystic Fibrosis and Organ Donation

A bit of background into cystic fibrosis and organ donation. The facts about the illness and being on the register.

Category: Living with CF

Comments 0

CF Awareness - 2

Cystic Fibrosis is a very serious genetic disorder which causes major lung and pancreas problems.
We made this video to let you know that it is time that we, as global citizens, do something about it.

Category: Living with CF

Comments 0

Chad Brown - Laps For Life With Cystic Fibrosis

Chad Brown, 27 years old with cystic fibrosis, living in Seattle Washington, took his FEV1s from 29% to 58% through the power of swimming. Chad was listed for a double lung transplant and now he is getting his college degree, working to support himself, and exercising for life! This LIVING. BREATHING. SUCCEEDING. Podcast/Vodcast series is the 1st in a series of 12.

Category: Living with CF

Comments 0

Cystic Fibrosis Foundation: "We Are Commitment"

The Cystic Fibrosis Foundation is powered by the work of dedicated volunteers. Through their fundraising, CF patients are enjoying longer, healthier lives. But some CF patients are still dying before their time. This video is a call to volunteers to strengthen their commitment to fight CF.

Category: Living with CF

Comments 0

Cystic Fibrosis Podcast – Exercise

Exercising is key to being compliant with CF.

Category: Disease management

Comments 0

Cystic Fibrosis Foundation: "Funding A Pipeline of Promise"

The Cystic Fibrosis Foundation strives to advance the search for a cure for CF by funding promising scientific research at medical centers and biotech companies nationwide. Frank Deford narrates this look at the Cystic Fibrosis Foundation's innovative approach to moving new treatments for CF into a pipeline that promises a better quality of life for all CF patients.

Category: Living with CF

Comments 0

CF and Starting a Family (testimonial)

Karen Vega, 30 years old with cystic fibrosis, discusses her pregnancy with CF and the joy of having twin boys. Karen and her husband, Alex, have two-year-old twin boys, Jayden and Logan. In this podcast, Karen describes the medical concerns she faced and the treatments she undertook for her successful pregnancy.

Category: Living with CF

Comments 0

Casey Flaherty - Nutrition and Cystic Fibrosis

Casey Flaherty, 25 years old with cystic fibrosis, living in New York City and running the ING New York City Marathon. Casey is working, attending nursing school, taking yoga classes and living, breathing, and succeeding with CF. This LIVING. BREATHING. SUCCEEDING. Podcast/Vodcast series is the 7th in a series of 12 made.

Category: Disease management

Comments 0

CF Clinical Trials: a mother's view

Tracey Anlauf, mother of Quinn, talks about why clinical trial participation is so important to her daughter's future

Category: Disease management

Comments 0

CF Clinical Trial: a child's experience

8-year-old Quinn Anlauf feels good about participating in a clinical trial.

Category: Disease management

Comments 0

CF Clinical trials : an adult's perspective

College student Emily Perry talks about why it is important for people with CF to participate in clinical trials.

Category: Disease management

Comments 0

CF Foundation: Sweat test

The American Cystic Fibrosis Foundation created this informational video about the sweat test to inform parents about the procedure. The procedure may differ from country to country and from clinic to clinic, but the underlying principle is universal.

Category: What is CF?

Comments 0

A day in the life of CF

Daily life with CF described by a patient

Category: Living with CF

Comments 0

Mauli Ola CF surf experience day

Volcom teamed up with the Mauli Ola Foundation and Ambry Genetics for a day of surfing with kids whos lives are affected by Cystic Fibrosis.

Category: Living with CF

Comments 0

Hope and Expectations from People with CF around Europe

Children and adults with CF from 15 countries around Europe share what they hope for and expect from researchers, caregivers and the future.
A film by CF Europe.

Category: Living with CF

Comments 1

Cystic Fibrosis Clinical Trials

Laura Taylor is making a difference by participating in clinical trials.

Category: Disease management

Comments 0

Daily life with Cystic Fibrosis

10 minute documentary final project about a day in the life of a ten year old

Category: Living with CF

Comments 0

What is cystic fibrosis? Animation

A short film on the what cystic fibrosis does to the body. Animated video provide facts about cystic fibrosis. Created for San Diego Chapter of the Cystic Fibrosis Foundation's CureFinders in-school program.

Category: What is CF?

Comments 0

CF Wind Sprints. Packing for Trips

Combining the power of video and social media. Jerry will answer CF-related questions in a short format video. In this episode, Jerry shows us how he packs his CF medications before traveling out of town. Its best to ensure you have all the meds you need and stay organized.

Category: Living with CF

Comments 3

Alicia's lung transplant CF

Testimonial by Alicia 32 years old

Category: What is CF?

Comments 0

Double lung transplant: Jon's story

Jon was diagnosed with cystic fibrosis as a baby and put on a lung transplant list aged 11. He talks about life before, during and after his transplant

Category: What is CF?

Comments 0

Emily Receives a Double Lung Transplant

At a young age, Emily DeArdo was diagnosed with cystic fibrosis. This condition left Emily in the intensive care unit with frequent lung infections, and it soon became evident that she would need a lung transplant. When a donor was found, Emily became the first patient to receive a double lung transplant at Columbus Children's Hospital, and she is now living a happy, healthy life.

Category: What is CF?

Comments 0

Double lung transplant survivor sets US swimming record

Survivor story: Kristin Donohue McGillycuddy had a double lung transplant in September 2007. This August Ms. McGillycuddy won 3 gold metals and a bronze for swimming at in the National Kidney Foundation U.S. Transplant Games and set a new record for the 100-meter individual medley. More than 100,000 Americans are on a waiting list for organ transplants.

Category: What is CF?

Comments 0

What is Cystic Fibrosis?

A short film on the what cystic fibrosis does to the body.

Category: What is CF?

Comments 0

Living with Cystic Fibrosis

A short film on the what cystic fibrosis does to the body. Lovisa McCallum and her husband David are the parents of two sons Matthew and Ethan. Their first son nine-year old Matthew has CF. He has two hours of therapy and treatment every day. Lovisa is a volunteer with Cystic Fibrosis Canada. "Living with Cystic Fibrosis" is a mother's story.

Category: About WikiCF

Comments 0

Source: Youtube & DailyMotion