CF and Media

One month without Anabel Stenzel

With profound sadness we regret to share that Anabel Stenzel passed away one month ago, on September 22, following a hard fought battle with intestinal cancer. With her transplanted lungs, she was breathing easy until the end.   We want to express…

Worldwide Cystic Fibrosis Day 2013

While many believe everyone born with CF is living well into their 30's and 40's there are still large populations of CF suffers dying in early childhood. For example, in Gaza life expectancy is below 12 and in Armenia below…

"Mi vida con F.Q." ("My Life with CF") launches its new website

“My Life with CF” is a beautiful project which first started as a small group connecting through social media, giving support and sharing knowledge between people with Cystic Fibrosis and their relatives and caregivers. This once small group has now grown…

Southern Albertans taking steps to cure Cystic Fibrosis

Those who have it, say you’d never know by their physical appearance. “Not a lot of people really know what C.F. is or what it’s about,” said walk participant Llyon Johnson. “It’s not always obvious when someone has Cystic Fibrosis.” But in…

Two Local Volunteers Win National Awards From Cystic Fibrosis Canada

Two local Essex County volunteers received recognition for their hard work in the end of April from Cystic Fibrosis Canada at the Annual General Meeting in that was held here in Windsor. Christopher Beausoleil of Tilbury was the recipient of the…

Boulder native pens poignant tale about losing spouse to cystic fibrosis

While attending Boulder High School, Elizabeth Scarboro dreamed of becoming an international journalist, traveling the world, putting off marriage and dating men in exotic foreign lands. It was not meant to be. At age 17 she fell in love with…

'I dreamed a dream' Girl beats cystic fibrosis by belting out Les Miserables classics

A pretty young woman has found a novel way of beating cystic fibrosis - singing songs from the smash hit musical Les Miserables. Aspiring singer Bianca Nicholas needs daily physiotherapy and a cocktail of drugs to prevent a deadly build up…

'Lace Bite' Hockey Documentary Aims To Knock Out Cystic Fibrosis

"Lace Bite" documentary being shown at Sarasota Film Festival chronicles the longest hockey game ever played to raise funds to battle cystic fibrosis. See the trailer by clikcing on the picture below Hockey is a tough sport full of sacrifice, injuries and…

Las Vegas event "Adding Tomorrows with Celine Dion" raises $1 million for CF Research

The Cystic Fibrosis Foundation is one step closer to finding a cure for cystic fibrosis thanks to a little help from some superstar friends. More than $1 million was raised in support of cystic fibrosis research efforts during a special performance…

The Power Of Two. "Two sisters, two cultures, two new chances at life"

Inspired by their 2007 memoir, “The Power Of Two” offers an intimate portrayal of the bond between half-Japanese twin sisters Anabel Stenzel and Isabel Stenzel Byrnes, their battle with the fatal genetic disease cystic fibrosis (CF) and miraculous survival through…

Breath Life. "When All You Can Do Is Live In The Moment"

In a world with diseases like cancer and diabetes, lesser known afflictions tend to be overlooked and underfunded. For the Montelone family, this is something that they are faced with everyday. Rob and Paulette Montelone have five children, three of which…

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